Grief Week

Life can change with a breath of air. I know. I’ve had the unforgettable experience of watching it happen. For four days we had to slowly and painfully watch life drain out of our four year old baby girl. That’s how I remember the last few days with my daughter. The nurse quietly explained to … Continue reading Grief Week

Silence

Dear Olivia, I am reminded of you through everything I do. Sometimes it’s really hard for me to sit through a presentation or meeting knowing the subject of the meeting would have impacted your quality of life. A career in disability rights isn’t always easy. Our family lives, breaths and believes in everything that we … Continue reading Silence

With You

Dear Olivia, I've been thinking about all the ways you impacted and changed my life for the better. Although my heart continuously aches and I find myself getting less emotional on a regular basis, but more often at random when I least expect it, I'm realizing that this is what life is going to be … Continue reading With You

More of the Same 

Dear Livy, After shock comes numbness. I know this because it's where I'm at. I care, but I don't care. I just feel like I'm going through the motions that are expected of me.  Vacation is what I expected...different. There's no structure. I miss that. Hardly anything we do anymore is based on your schedule. … Continue reading More of the Same