Life can change with a breath of air. I know. I’ve had the unforgettable experience of watching it happen. For four days we had to slowly and painfully watch life drain out of our four year old baby girl. That’s how I remember the last few days with my daughter. The nurse quietly explained to … Continue reading Grief Week
Tag: #lifeafterloss
#ProtectOurCare
Dear Livy, Last week I was invited to share our families Medicaid story at Leader Pelosi's 53 Anniversary Medicaid Press Conference. It allowed me to share a piece of you with the rest of world. It's had over 25K views. Here's what I said. After being born with a disability to a teen mother with … Continue reading #ProtectOurCare
Silence
Dear Olivia, I am reminded of you through everything I do. Sometimes it’s really hard for me to sit through a presentation or meeting knowing the subject of the meeting would have impacted your quality of life. A career in disability rights isn’t always easy. Our family lives, breaths and believes in everything that we … Continue reading Silence